Shared experiences (again)

 I belong to a Fbk page for TN (Trigeminal Neuralgia) which is an invisible nerve pain condition. I don’t regularly read the posts there, because so many are in chronic and severe pain, and it can be both scary reading about it, wondering if that will happen to me, as well as it can make me feel like a fraud, because my pain has so far been reasonably well managed. Still, the other day I saw someone talking about raising the issue of the condition and of their pain with others. Many of them struggle to get any form of understanding or tolerance of their pain from friends or family members, and so suffer (literally) in silence. Someone said the following:

“I still think it is worth persistently and politely pulling people up, and explaining why, though.”

I agreed wih them. And I guess that’s why I write this blog too. Because, like TN, not having children can be an ongoing source of pain for many members of our No Kidding community, and yet it is invisible, ignored, disenfranchised. When I casually mentioned TN once, a friend said to me (innocently), “but you don’t get that now, do you?” And I had to explain that every day I feel it, I’ve learned to live with it, and that I am lucky that medication has helped me so far. That’s not unlike those of us without children. Every day we live with it, we feel it because we know we don’t have children, our friends and family assume that we are fine now, and so we are ignored.

I guess it’s just another example that there are so many of us in society who feel marginalised, misunderstood, and in pain, for a myriad reasons. There are more people who might understand our situation than we realise. So maybe talking about it, both to spread the word to others and to get support from each other, is all we can do. Which I guess is what I try to do. Calmly (I hope) explaining our No Kidding lives when I can. Writing here and thinking. Walking alongside all of you, and feeling grateful for the fact that you are walking alongside me too.